Had a lovely full nights sleep and a sleep in till 10am. (Thank you furry kids for letting me sleep). Not been doing mich since I crawled out of bed but now I’m all geared up to spend the rest of today stitching. Here’s my starting point on the Lakeside Needlecraft, Bands of Variation SAL. I’m loving every stitch and I’m loving the Thread Pickerz hand dyed silks.
No more radiotherapy treatments for me. None, nada, zilch. Woohoo. I can’t say how happy my husband and I are right now. It seems surreal because it’s been part of our lives for the past 8 weeks. It would of only been 6 weeks but due to the sickness and snow it dragged it out. But at least we can finally say it’s done. Now we can get back to normal. Thank you to all of you that have given me your support over the past 8 weeks. It means a lot.xXx
Had treatment number 29 today. It’s my last treatment tomorrow. I’ve got to carry on with the steroids but gradually lower the dose over the next two weeks because symptoms from radiotherapy can last a few weeks after the treatment has stopped. Taking more steroids is kind of a good thing right now because they have helped increase my appetite and I’m finally starting to gain the weight I lost over the last 18 months due to sickness.
Going to spend the rest of today and tomorrow doing as little as possible. We just want to relax and try recover from the last 8 weeks of stress. I plan to just eat, sleep and eat some more.
Just 2 left to go. The Tomotherapy machine is having a service tomorrow so we get a day off. We plan to sleep in and just chill the heck out. My last 2 treatments are Thursday and Friday. It’s going to seem so strange on Monday morning know that we haven’t got to do the hour drive each way, no treatment. We can just get back to normal again. Well as normal as Neurofibromatosis Type 2 can be.lol.
I have plenty of cross stitching to catch up on. 8 weeks worth. Whoa what fun. My routine will be sleep, eat, stitch, eat, stitch, eat and sleep. 😉
Next week will be my last 4 radiotherapy treatments. My last one is Friday. Wednesday the machine is having a service so we get the day off. Cannot believe how close to the end I am. It’s been a struggle for both myself and my husband but we’ve held it together.
This weekend we’re spending the time getting all things done which got ignored during the week. Also we’re both doing our hobbies which we barely had the energy to do. Had a lovely sleep in this morning so I have the brain power to get some cross stitching done.
Cannot believe it. I have just 6 radiotherapy treatments left to go! It’s been a struggle but I am pleased to have had radiotherapy treatment rather than surgery on my head.
We didn’t think we’d see the end of my Radiotherapy treatment but we’re finally down to the single figures. All seems to be good and hopefully the next 8 sessions will go to without a hitch. One day next week the radiotherapy machine is undergoing a service so we’ll get a day off. Yay! The end is near!!!
I’ve finally done a full 5 days of Radiotherapy. These higher dose of steroids have done the job. I now have 11 treatments left to go!!!!
We’re now half way through my Radiotherapy treatment. Yesterday I started the 4mg of steroids and so far they are doing good. I have more energy and my appetite is back. Today was my first treatment of the week and so far I’m not experiencing the usual exhaustion I was getting after a treatment. So we’re feeling really hopeful that this half of my treatment is going to be a lot easier .
I had radiotherapy treatment on Monday but the evening I was feeling rough and started vomiting. Had to cancel Tuesday and Wednesday sessions. Went to Addenbrookes Thursday for a session and a review and after talking with Dr Jena they cancelled the sessions for Thursday and Friday. They put me on a higher dose of steroids. Dr Jena was convinced he first prescribed me 4mg of steroids daily and even tried to argue with Pete when Pete told him Dr Jena only prescribed me 1mg daily. I was even to the point in refusing the rest of the treatment if it meant I was going to be vomiting every single week. I had been pushed to my limit and so close to just giving up and just leaving the intracranial tumours alone, full stop. That was hard to type, what I was feeling Thursday because I had really felt so low and I couldn’t see a way out but after plenty of sleep and hours of talking with Pete I am back to seeing a light at the end of the tunnel. So starting Sunday I am on 4mg of steroids. Monday we will the the start of my last 16 sessions of Radiotherapy. It would seem I am sensitive to the radiation but no one wanted to agree when we mentioned it before when I’ve been vomiting after a few sessions. Hopefully the last 16 will go to plan this time. We can’t wait to get back to normal.